Adult Congenital Heart Disease (ACHD) Causes and Risk Factors: pregnancy, arrhythmias, hypertension | National Heart Centre Singapore
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Adult Congenital Heart Disease (ACHD)
Adult Congenital Heart Disease (ACHD) - How to prevent?
Adult Congenital Heart Disease (ACHD) - Causes and Risk Factors
The incidence of
congenital heart disease (CHD)
in Singapore was 0.81% of total live births based on the birth defect registry from 1994-2000 but this has increased to 0.97% in 2021. In Singapore, with an estimated population of around 4.3 million, the estimated number of adults with CHD would be in the region of 12,000 adults with an extra 300-320 cases added annually, assuming an annual birth of 37,000 – 40,000 newborns. It is estimated that in the next decade, the number of adult patients with congenital heart disease worldwide will exceed their paediatric counterparts.
Challenges
Despite their improved life expectancy, congenital patients stepping into adulthood face many issues:
They have limited understanding of their underlying congenital defects
Many believe that they are ‘cured’, unaware of possible sequel from their surgery and the need for further surgical procedures
Medical and surgical issues which require life-long follow up, regular check-ups and repeated investigations and evaluation
Potential complications such as
heart failure
,
abnormal heart rhythm (arrhythmia)
or
pulmonary hypertension
Issues related to pregnancy, contraception, risk to offspring that need to be discussed
Risk of
endocarditis
and the need for antibiotic prophylaxis
Management of associated non-cardiac medical problems
Social, emotional, financial, vocational, educational, psychological and lifestyle issues specific to each individual. As they enter adulthood, ACHD patients need to take charge of their lives, substituting parental overprotection in childhood with a sense of responsibility and maturity of their own
In the past, these adult patients were usually managed by paediatric cardiologists who, although excellent in interpreting and comprehending the underlying physiology and haemodynamics, were nonetheless ill-equipped in managing adult related problems like
coronary artery disease
, pregnancy and contraception,
arrhythmias
,
hypertension
. Research has shown that ACHD patients especially those of moderate to severe complexity do better when their care is centralised to a dedicated specialised ACHD unit.
Having survived into adulthood, ACHD patients are now facing a new set of challenges encompassing not only medical or surgical problems but extending to psychological, vocational and lifestyle issues. Congenital heart disease is a heterogeneous condition with a wide spectrum of varying complexity and severity. Therefore, all ACHD patients (with the exception of those with mild isolated
valvular heart disease
or those with repaired
patent ductus arteriosus
,
ventricular septal defect
and
atrial septal defect
) should be followed up in a specialised ACHD unit with a dedicated multidisciplinary team who can anticipate the various issues particular to each individual. Only then can we provide adequate care and work towards improving the clinical outcome of this special group of patients.
Adult Congenital Heart Disease (ACHD) - Preparing for surgery
Adult Congenital Heart Disease (ACHD) - Post-surgery care
Adult Congenital Heart Disease (ACHD) - Other Information
Display Entire Article +
Symptoms
Diagnosis
Tags:
Abnormal Heart Rhythm/Arrhythmia,
Atrial Septal Defect,
Coronary Artery Disease / Coronary Heart Disease,
Hypertension,
Patent Ductus Arteriosus,
Patent Foramen Ovale,
Tetralogy of Fallot,
Ventricular Septal Defect (VSD)
Article contributed by
Department of Cardiology
,
National Heart Centre Singapore
The information provided is not intended as medical advice.
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Ventricular Septal Defect (VSD)
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Abnormal Heart Rhythm/Arrhythmia
Atrial Septal Defect
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Patent Foramen Ovale
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